Showing posts with label Coeliac. Show all posts
Showing posts with label Coeliac. Show all posts

Saturday, June 13, 2020

Twelve years gluten free

Today marks my twelve year Coeliac Anniversary - my Coeliacversary.


Coeliac disease and gluten free

Twelve years ago today I was diagnosed with Coeliac Disease and began my journey into the gluten free world.

What is Coeliac Disease?


Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

In the UK it's estimated that 1 in 100 people have the condition.

Living a gluten free life


Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

My life as a Coeliac in LEGO form
My life as a Coeliac in LEGO form

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.


Thank you to everyone for their support, tips, help and recommendations over the years. It's been very much appreciated.

For more information on Coeliac Disease check out the NHS Choices and Coeliac UK websites.

Saturday, May 16, 2020

International Coeliac Day

Today is International Coeliac Day.


Today is International Coeliac Day

Other important dates for your gluten free diary:

  • May is Celiac Awareness Month.
  • In the UK Coeliac Awareness Week 2020 (aka Gluten Free Community Week) runs from the 11th to the 17th May.
  • International Coeliac Day is on Saturday 16th May.
  • National Celiac Disease Awareness Day is on the 13th September this year.
  • The week before Christmas is Gluten Free Baking Week.


About Coeliac Disease


Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition.

Monday, May 11, 2020

Coeliac Awareness Week, aka Gluten Free Community Week


This week is UK Coeliac Awareness Week, aka Gluten Free Community Week.



This week is Coeliac Awareness Week, aka Gluten Free Community Week

Gluten Free Community Week runs from the 11th to the 17th May.

Other important dates for your gluten free diary:


  • May is Celiac Awareness Month.
  • International Coeliac Day is on Saturday 16th May.
  • National Celiac Disease Awareness Day is on the 13th September this year.
  • The week before Christmas is Gluten Free Baking Week.


About Coeliac Disease


Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition.

My Coeliacversary


I was diagnosed with Coeliac Disease in June 2008.

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.

Tuesday, May 05, 2020

Gluten free and not gluten free

The problems of being a Coeliac.


I was reminded of some great merchandising of Gluten and Gluten Free food products today. They were placed dangerously side-by-side in a natural foods shop in Kentish Town, London back in 2011.

Gluten Free Vegetable Suet and Gluten
Don't get these two mixed up!

The month of May is Celiac Awareness Month, next week is Coeliac Awareness Week in the UK, while International Coeliac Day is on Saturday 16th May.

Related blog posts:
- Coeliac Problems
- Funny things about being a Coeliac

Friday, May 01, 2020

May is Celiac Awareness Month

This month is Celiac Awareness Month.


Coeliac Awareness

Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.


In the UK it's estimated that 1 in 100 people have the condition, in the USA the figure is 1 in 133.


It's important to know and remember that Celiac/Coeliac is NOT an allergy, it's NOT a preference, it's NOT a fad, it's NOT a diet, it's NOT an intolerance, it's NOT a choice - it's an AUTOIMMUNE DISEASE.

Visit the Beyond Celiac website for more information.

In the UK Coeliac Awareness Week 2020 (aka Gluten Free Community Week) runs from the 11th to the 17th May.

International Coeliac Day is on Saturday 16th May.

National Celiac Disease Awareness Day is on the 13th September this year.

The week before Christmas is Gluten Free Baking Week.

This year marks my 12th year living gluten free. I was diagnosed with Coeliac Disease in June 2008.

Check out my gluten free, celiac and coeliac disease blog posts.

Luckily I've found some 100% gluten free places that are safe for people with Coeliac Disease. I'm really looking forward to visiting them again once the coronavirus pandemic is over.

Wednesday, April 08, 2020

Dates for your (gluten free) diary

National Coeliac awareness days, weeks and months in 2020.


Coeliac Disease Awareness

Upcoming important dates for your (gluten free) diary:

  • May is Celiac Awareness Month.
  • In the UK Coeliac Awareness Week 2020 (aka Gluten Free Community Week) runs from the 11th to the 17th May.
  • International Coeliac Day is on Saturday 16th May.
  • National Celiac Disease Awareness Day is on the 13th September this year.
  • The week before Christmas is Gluten Free Baking Week.


Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition.

Monday, March 16, 2020

Fried Round Gluten - my kryptonite!

Spotting a new glutenous product to avoid.


As someone with the autoimmune condition Coeliac Disease I MUST avoid gluten at all costs.


While at Bolton Market on Saturday Emily spotted a bag of my kryptonite!


Fried Round Gluten
I wonder what Fried Round Gluten tastes like? I'll never know

I've also seen Fried Gluten in a can and Roasted Gluten before.

Gluten is a protein found in wheat, rye, barley and oats. For people with Coeliac Disease gluten is a very dangerous substance that causes all manner of health problems. Check out the Coeliac UK website for more information.

Thursday, March 12, 2020

Lunch at The Remedy Kitchen in Manchester

Guess who had lunch* out yesterday?


Marvellous steak and eggs at The Remedy Kitchen in Manchester
Marvellous steak and eggs at The Remedy Kitchen in Manchester

It was delicious.

* technically I should call it 'dinner' since I now live in the North West!

-------

Finding 100% gluten free food.


As someone with Coeliac Disease the challenge to find food that is not only safe, but healthy and tasty when out of the house is massive.



The Remedy Kitchen in Manchester city centre is superb as it's one of the very few 100% gluten free places that are safe for people with Coeliac Disease in the whole of the UK.



I highly recommend a visit.

Check out The Remedy Kitchen website for more information.

The Remedy Kitchen was previously called 3 Squared Cafe and rebranded last year. The name is different, but the approach to serving high quality food is the same.

We first heard about the restaurant last September.

The menu is 100% gluten and wheat free, as well as being diary free and refined sugar free.

Wednesday, January 29, 2020

When eating gluten-free isn’t a choice - This Is MedTech

When eating gluten-free isn’t a choice

Champion miniature golfer Richard Gottfried spent years feeling ill before he discovered that he had coeliac disease and gradually regained his health.

Believing he had a common digestive disorder called irritable bowel syndrome (IBS), Richard took IBS medication to ease his symptoms, which included bloating, vomiting, diarrhoea and severe lethargy. However, he was unaware of the real cause: gluten-containing foods. When he continued to feel ill, he thought he just had to put up with it. “When I look back, I can’t believe I lived so long eating what I did,” remembers Richard, who would often avoid food altogether because he didn’t want to be sick.

“I was so thin but bloated, so I looked like I’d been eating all day long. Often I would only have a bowl of corn flakes for breakfast, be violently ill, and then not eat anything else for the rest of the day,” he tells This Is MedTech. After several years Richard’s condition became progressively worse until he felt so ill that he went back to the doctor.

“I had a thorough check, including a blood test, an endoscopy and a sigmoidoscopy,” he says. This led to a diagnosis of coeliac disease as well as a wheat allergy. “I was referred to a gastroenterologist and a dietician, and that’s when I finally began to understand the impact and implications of my diagnosis.”

I need to be gluten free, not a glutton (or any number of other misspellings of gluten)

According to Coeliac UK, coeliac (pronounced see-liac) disease affects at least 1 in 100 people in the UK and Europe, but only 30% of people with the condition are currently clinically diagnosed. It’s a genetic autoimmune disease that’s triggered by eating gluten, a protein found in wheat, barley and rye. It’s not a food allergy or intolerance, or IBS. For people with coeliac disease, eating gluten damages the lining of the gut, which prevents normal digestion and absorption of food. Serious health problems can be associated with coeliac disease including osteoporosis, cancer of the small bowel and increased risk of other autoimmune diseases.

There is no cure for the condition and the only treatment is a strict gluten-free diet for life. “It can be a real drain both mentally and physically, but you have to stay as positive as possible,” comments Richard, who hasn’t wavered from his gluten-free regime in the decade since his diagnosis. “Once you’re on a gluten-free diet, it can take years for your body to recover. I’ve only just started putting on weight again in the past couple of years. Still, there’s always a risk that you’ll be ‘glutened’ which can set you back days or weeks.”

Richard says Coeliac UK and his local coeliac group were extremely helpful, especially in the beginning. “Back then, there weren’t really gluten-free options in supermarkets. The coeliac groups gave me tips on gluten-free food, cooking, storage, places to shop, etc. They also held dinners and other events, and I made some good friends. We still go out together.”

There are only a handful of 100% gluten-free restaurants in the UK, so one of Richard’s aims is to increase that number by talking about it on his blog. “We recently went out to a 100% gluten-free pub in Cambridgeshire, and it was so nice to be able to go out and feel normal.”

Having a superb 100% gluten free meal at The Oxford Place in Leeds
Having a superb 100% gluten free meal at The Oxford Place in Leeds

He also believes it’s important to raise awareness about coeliac disease by talking openly about it, as people can be embarrassed to discuss their symptoms. “You’ll never get well if you don’t go to the doctor,” he points out. “Diagnosis is the first step. Once you know what’s wrong, you can start tackling it.”

Interview by Karen Finn for This Is MedTech, January 2019.

Link:
- This Is MedTech

Related blog posts:
- Coeliac Disease
- Gluten Free

Wednesday, December 18, 2019

Happy Gluten Free Baking Week

The week before Christmas is Gluten Free Baking Week.


I found out via the National Day Calendar that the week before Christmas is Gluten Free Baking Week!


Since I attended the Cheshire Coeliac Meeting in October I've got into baking gluten free snacks, savouries and cakes.


Gluten free sausage rolls
Gluten free sausage rolls

What shall I bake for Gluten Free Baking Week?

Friday, November 01, 2019

Gluten free at The Oxford Place in Leeds

We were recently back in Leeds and so had to have a meal at our favourite restaurant, The Oxford Place.

Gluten free at The Oxford Place in Leeds
The food at The Oxford Place is superb. And 100% gluten free

The menu at The Oxford Place is 100% gluten free. Check out The Oxford Place website for more information.

Luckily we've got some more trips to Leeds planned this year and can't wait for our next meals there.

Sunday, October 13, 2019

The Cheshire Coeliac Meeting, gluten free cakes and sausage rolls

A day out doing gluten free things in Cheshire.


Coeliac Group Meeting in Middlewich, Cheshire
The bunting was out for the Coeliacs of Cheshire

I attended the Cheshire Coeliac Group Meeting in Middlewich yesterday and had a nice afternoon buying cakes, chatting to fellow coeliacs and watching the cooking demonstrations.


Gluten free cakes from Lottie's Bakehouse
I bought a fair few gluten free cakes to see me through the week

Chris from the Cheshire Coeliac Group and Cakes by Noah getting to grips with Genius Puff Pastry for his gluten free sausage rolls
Chris from the Cheshire Coeliac Group and Cakes by Noah getting to grips with Genius Puff Pastry for his gluten free sausage rolls

Gluten free sausage rolls
Here's some Chris made earlier

Gluten free cakes from Lottie's Bakehouse
I bought a couple of the doughnuts from Lottie's Bakehouse - one sugar coated and one cinnamon flavour. They were both quickly scoffed

I also had a couple of wins on the raffle!

As I'd bought a lot of delicious cakes from Lottie's Bakehouse the cooking demonstration by group organiser Chris was perfect, as it gave me inspiration to do some savoury baking myself. Something I haven't done in many years. Partly because my view of food and cooking changed when I was diagnosed with Coeliac Disease, but also because Emily is such a superb cook.

Gluten free sausage rolls
Before cooking here are the rather rustic looking sausage rolls. I used Jus-Rol gluten free puff pastry and Morrisons gluten free pork chipolatas

Gluten free sausage rolls
After baking!

Gluten free sausage rolls
In his cooking demo Chris had suggested putting other ingredients in with the sausage meat. The three on the right are plain sausage rolls, while the one on the far left is filled with Tewkesbury Hot Mustard, the next one was Cheddar Cheese and the next one was pork and Bramley apple flavour in a nod to a Bedfordshire Clanger

Gluten free sausage rolls
They were all delicious. Even Emily said so!

Check out the Cheshire Coeliac Group on Facebook for more information.

More info on Coeliac Disease, its effects and how it must be treated with a strict and life-long gluten free diet can be found on the Coeliac UK website.

Thursday, September 26, 2019

Schär gluten free products in Düsseldorf, Germany

A look at Schär gluten free products on sale in Germany.


Schär gluten free products on sale in Germany
Lots of Schar gluten free food in Germany

Emily was recently in Düsseldorf, Germany and took these snaps of the Schär gluten free products available there. They are certainly different to the products available in the UK.


Savaiardi by Schär gluten free
Savaiardi

Vollkornbrot by Schär gluten free
Vollkornbrot

Pain Brioche by Schär gluten free
Pain Brioche

Knackebrod by Schär gluten free
Knackebrod

Zwieback by Schär gluten free
Zwieback

Carrotinis by Schär gluten free
Carrotinis

In 2017 Emily brought me back some Schär gluten free goodies from Spain.

Link:
- Schär gluten free

Related blog posts:
- Schär
- Gluten free

Monday, September 23, 2019

Gluten free at 3 Squared Cafe in Manchester

Finding a 100% gluten free cafe in Manchester.


We recently found out about 3 Squared Cafe in Manchester city centre. The menu is 100% gluten and wheat free, as well as being diary free and refined sugar free.


We visited for the first time yesterday afternoon and it was amazing.


Beef brisket with poached eggs and salsa verde at the 3 Squared Cafe in Manchester
Pulled beef and eggs - perfect

The beef brisket with poached eggs and salsa verde was absolutely delicious.

It was very nice to have a meal out with Emily where we could both eat for a change.

We ordered 3 of the 4 desserts. They were all lovely.

Desserts at the 3 Squared Cafe in Manchester
We had the Warm Brownie & Coconut Whip, Carrot & Cinnamon Cake and the Chocolate & Pistachio Tart for pudding

You can find the 3 Squared Cafe in the Royal Exchange Arcade in Manchester city centre.

We're looking forward to our next visit already.

Link:
- 3 Squared Cafe

Related blog posts:
- Gluten Free
- Coeliac Disease
- Manchester
- 100% gluten free places in the UK

Thursday, June 13, 2019

Eleven years gluten free

Today marks my eleven year Coeliac Anniversary - my Coeliacversary.


Eleven years ago today I was diagnosed with Coeliac Disease and began my journey into the gluten free world.


Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

My life as a Coeliac, in LEGO form
Why I avoid gluten at all times!

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.

Thank you to everyone for their support, tips, help and recommendations over the years. It's been very much appreciated. I've also found some funny things about being a Coeliac along the way.

And a BIG thank you to Emily for all of her help and support throughout my struggles with the illness.

For more information on Coeliac Disease do check out the NHS Choices and Coeliac UK websites.

You can also view the very first blog post I wrote about gluten free / Coeliac stuff at 'Gluten Free Fish & Chips at Rossi's in Swansea'.

Monday, April 29, 2019

100% gluten free at the Off The Wheaten Track Deli in Altrincham

A visit to the new Off The Wheaten Track gluten free deli in Altrincham, Greater Manchester.


On Saturday we headed over to nearby Altrincham to visit the brand new Off The Wheaten Track Deli. We'd heard the 100% gluten free deli was opening and were keen to check it out.


The menu at Off The Wheaten Track is 100% gluten free
The menu at Off The Wheaten Track is 100% gluten free

We had a superb lunch and it really is brilliant that all of the food there is 100% gluten free.


The beef sandwich was excellent and there was a lot of choice on the menu. It was nice to see the deli busy with lots of people enjoying the gluten free options. We saw people ordering other items we'll try on future visits.

It was so nice to be able to have a sandwich out of the house. The beef sandwich I had was packed full of ingredients and flavour. Delicious
It was so nice to be able to have a sandwich out of the house. The beef sandwich I had was packed full of ingredients and flavour. Very tasty

Off The Wheaten Track Deli has a huge selection of cheeses and we tried the very interesting charcoal cheddar. It was delicious.

Some of the cheese we tried. It's NOT Black Pudding Cheese despite what it looks like!

We're looking forward to returning to the Off The Wheaten Track Deli.

Check out the Off The Wheaten Track Deli website for more information and opening times.

Related blog posts:
- Coeliac
- Gluten Free
- 100% gluten free places in the UK

Wednesday, April 24, 2019

Gloof - 100% gluten free in Soham, Cambridgeshire

Last Thursday we visited Gloof, the new 100% gluten free coffee shop in Soham, Cambridgeshire.

Gloof, the new 100% gluten free coffee shop in Soham

We'd heard about it online and were looking forward to our stop-off in the town while en route to Ipswich.

Gloof, the new 100% gluten free coffee shop in Soham
Look at that array of cakes. The empty spot at the front of the counter is where the sausage rolls were

We received a warm welcome and I was amazed by the selection of cakes and sweet treats on the counter. I also spotted sausage rolls and ordered one immediately.

Gloof, the new 100% gluten free coffee shop in Soham
A sign every Coeliac wants to see

We then sat down and had a look at the menu. It was superb to once again read that EVERYTHING is gluten free on the menu. As someone with Coeliac Disease I have struggled for years to find places that are 100% gluten free. Thankfully, the owner of Gloof is also a Coeliac so understands the risks and has ensured that the environment is free of cross-contamination.

We ordered a panini each - I went for Cheese & Ham, while Emily had the Mozzarella and Sun Dried Tomatoes one so we could share.

Luckily we arrived just before three other couples came in, creating a mid-afternoon rush.

All of the food looked great and the sausage rolls were proving popular, so popular that they actually ran out while we were there. Nice to see, but it did stop me from ordering a second one.

Gloof, the new 100% gluten free coffee shop in Soham
Sausage roll starter

The sausage roll arrived shortly after ordering and was served warm, with a sachet of ketchup. It's been so long since I've been able to eat something seemingly so simple for lunch. I might get to eat a sausage roll from M&S, but when I'm out and about I wouldn't be able to get a hot one. Little things like that can make a big difference and I really enjoyed this 'starter'.

Gloof, the new 100% gluten free coffee shop in Soham
Panini main

The paninis were up next and were really good. It's very rare that Emily and I get to have a lunch together where we both get to eat and it was especially nice to be able to share half of our paninis.

We still had room for dessert, so I had the double chocolate cake and Emily had a cheese scone. Both were excellent.

Gloof, the new 100% gluten free coffee shop in Soham
Double chocolate cake with a cake fork for dessert

Before leaving we also had a try of the lemon drizzle cake. It was delicious.

We both rate Gloof highly for the service, environment, range of food and general niceness. We're looking forward to our return visit already.

Check out Gloof for more information and opening times.

Related blog posts:
- Coeliac
- Gluten Free
- 100% gluten free places in the UK

100% gluten free places in the UK

As someone with Coeliac Disease it can be a nightmare finding somewhere that is 100% gluten free and safe for coeliacs.

While there do seem to be more and more places offering 'gluten free' options these days, there is still the risk of cross-contamination unless the place is 100% gluten free.

Gluten free meal at The Oxford Place in Leeds
A very happy Coeliac on a recent gluten free day out in Leeds

Thankfully there are some superb 100% gluten free restaurants, tea rooms, pubs and takeaways that we've found on our travels, including The Oxford Place in Leeds, Cambridgeshire, Gloof in Soham, Cambridgeshire and The Compass Inn at Winsor, Hampshire.

Look at all those cakes at Gloof in Soham - they are all 100% gluten free

We also know about, but have yet to visit, 2 Oxford Place in York and Niche in London.

Luckily there is a gluten free deli opening up in Altrincham, Greater Manchester this Saturday. We're looking forward to checking out Off the Wheaten Track soon.

Do you know of any other 100% gluten free places in the UK? If so, do let me know in the comments.

Monday, March 25, 2019

Gluten free in Leeds

A gluten free day out in Leeds.

Last Saturday we visited the Gluten Free Food Fair organised by Leeds Coeliac Group at Pudsey Civic Hall. It was the first gluten free food fair we've been to in a while and it was nice to buy some cakes and savouries from some new suppliers.

About to eat my first Jam Doughnut in over a decade!
About to eat my first Jam Doughnut in over a decade!

We bought some brilliant food and drink from Wildcraft Gluten Free Bakery, Lottie's BakehouseK&N's Gluten Free Kitchen, Gluten Freekz, Barkat and Green's Beers.

We couldn't be near Leeds and not have a meal at our favourite restaurant, The Oxford Place. Once again we had a superb meal, although after scoffing the jam doughnut from Wildcraft Bakery earlier in the day I only had room for two courses.

Gluten free meal at The Oxford Place in Leeds
I had the Pan Seared King Scallops with Samphire, Tomato and Shallot to start

Gluten free meal at The Oxford Place in Leeds
Emily had the Duncombe Park Shot Pheasant & Black Pudding Terrine, Homemade Piccalilli and Sweet Onion Marmalade for her starter

Gluten free meal at The Oxford Place in Leeds
We both had a Gourmet Beef Burger with Smoked Mango Chutney, Harrogate Blue Cheese & Skinny Frites for our main course

Gluten free meal at The Oxford Place in Leeds
A very happy Coeliac

Wednesday, January 30, 2019

When eating gluten-free isn’t a choice

Check out a case study about my Coeliac Disease journey on the This is MedTech website.

It's nice to do my bit to raise awareness of Coeliac Disease and the importance of getting a diagnosis.

Richard Gottfried - gluten free
I'm gluten free, not a glutton (or any number of other misspellings of gluten)

Link:
- This is MedTech

Related blog posts:
- Coeliac Disease
- Gluten Free
- Coeliacversary